Washington State University Translational Medicine Symposium 10/27/17
Presentation on Home Care
by Serrana Pilar
Thank you for this opportunity to share on the subject of home care.
I have spent 25 years using available resources to help build a care system for a friend, now 48, who was diagnosed with ALS at age 19. This presented daunting care challenges related to losing motor function and speech, while retaining intellectual and sensory function. Due to our unified care system, he has outlived his 5-year prognosis by 23 years, followed his artistic path as a musician of renown, and maintained a vibrant social life. The system holistically addresses three closely linked challenges: dwelling, care, and communication. I propose that further development of the following solutions to these challenges would benefit people with all types and levels of long-term care need, and those who care for them….Read More